📍 Why This Matters for Families in Hillsboro, Beaverton, and Beyond

At Pain & Performance Coach LLC, we care for children and teens dealing with chronic pain, fatigue, and mobility challenges. One condition we see more often is hypermobile Ehlers-Danlos Syndrome (hEDS)—a connective tissue disorder that affects strength, stability, and emotional health.

🧩 A 2025 study found that kids with hEDS are struggling with far more than just joint pain—they’re dealing with anxiety, depression, and sleep disorders that often go untreated.

Disclaimer:  this information is for your education and should not be considered medical advice regarding diagnosis or treatment recommendations. 

🧬 What Is Hypermobile Ehlers-Danlos Syndrome?

hEDS is the most common form of Ehlers-Danlos Syndrome and presents in kids with:

🤸‍♂️ Joint hypermobility

😣 Persistent pain and muscle fatigue

💤 Sleep troubles (like insomnia and poor-quality rest)

😔 Increased anxiety and depression

🧠 Challenges with focus, mood, and daily life

These issues affect not just physical health, but academic, social, and emotional development.

🔎 What the 2025 Study Revealed

👥 Study sample: 123 pediatric hEDS patients (average age: 15.8)

📊 Key findings:

• 80% had clinical anxiety 😟

• 43% had clinical depression 😞

• 44% reported poor sleep quality 😴

• Only 17% had a formal sleep evaluation 🛏️

⚠️ Anxiety and pain were the strongest predictors of poor quality of life—even more than depression or sleep alone.

🛌 Why Mental Health & Sleep Screening Matter

Despite these high rates:

🚫 Most kids never see a psychologist or psychiatrist

🚫 Most don’t get referred for sleep evaluations

🧪 But tools like GAD-7 (for anxiety) and PROMIS Pain Scales can help detect what’s often overlooked

🧠 Early detection = better outcomes. These tools help families and clinicians act before things spiral.

🏃‍♀️ What This Means for Pediatric Rehab

Physical therapy is essential—but it’s only one part of the puzzle.

✅ Strength and mobility training

✅ Pain education (without fear!)

✅ Mental health integration

✅ Behavioral sleep strategies

💡 At our clinic, we take a whole-person, team-based approach using cutting-edge tools like:

• 🩸 Blood flow restriction (BFR) therapy to improve tolerance to weight bearing and weight

• 🦶 Force plates and dynamic balance testing

• 💪 Resistance training (like with the Beyond Power Voltra, bands, dumbbells, and kettlebells)

• 🧠 Patient-centered recovery strategies

🤝 Local Help for Hillsboro-Area Families

Whether you’re in Hillsboro, Beaverton, Forest Grove, Cornelius, or North Plains, we offer expert support for kids and teens navigating hypermobility.

👨‍👩‍👧‍👦 We welcome:

• Parents unsure where to turn after a diagnosis

• Teens struggling with fatigue or pain at school

• Physicians needing trusted rehab partners for pediatric hEDS

🛠️ We’re not just about pain relief—we’re here for true functional recovery.

📅 Ready to Take the Next Step?

Pain & Performance Coach LLC is your local resource for high-quality pediatric physical therapy that addresses the full spectrum of hEDS challenges.

✅ Evidence-based

✅ Tech-forward

✅ Compassion-led

📍 Serving: Hillsboro | Beaverton | Forest Grove | Cornelius | North Plains

📞 Call now or book online to schedule your pediatric evaluation

Disclaimer:  this information is for your education and should not be considered medical advice regarding diagnosis or treatment recommendations. 

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